Mary Caruso

Help find a treatment for Friedreich’s Ataxia!

 

some choices in life come so naturally!

some choices in life come so naturally!

 

YOU ARE ALWAYS ONLY ONE CHOICE AWAY FROM CHANGING YOUR LIFE.

 

That is a quote I recently read and thought about it a lot!  I think I have always been a person of principal but I have always been a kind of coward when it comes to confrontation.  So that has kept me out of a lot of trouble over the years.  But keeping with the quote and my passion for making the world a kinder place I realize that sometimes you just have to speak up.  This brings me to two episodes that I feel compelled to talk about; one I spoke up and one I will not.  Well, I won’t speak up directly but I will speak up about both now in hopes that a few people will realize that we can do little things as human beings to make a difference.

The first episode is really about Sam.  Sam has an internship, which she loves!  She has been working at her internship now since the start of her fall semester.  It isn’t easy for her to get there but she does it.  I think she has missed one day since she started.  I am proud because despite having to always find rides, being dropped in the parking lot, coordinating people to get her in and out of the car and getting into a building that isn’t accessible friendly she perseveres.  Well, the other night she was working and they ended up closing early.  Everyone packed up, walked outside, locked the building, got into their cars and left.  Well, that is everyone but Sam……..now she told me not to say anything and I will respect that but let’s think about this.  AND before anyone says anything,my disappointment has nothing to do with the wheelchair.  If I was at a meeting at night and I walked out with a friend who was waiting for a ride I would not leave them there alone.  It’s about being a kind human being, a thoughtful person.  Besides, imagine if someone waited with her?  What a chance to get to know someone a little bit, maybe a joke or two or just a small bonding moment.  To me there was a choice for any of those people to change their life just a little bit…………to make a new friend, do something nice.  Instead they all went home their separate ways and that is that, to me an unkind, uncaring sort of existence.

This next escapade will probably get me a lot of flack but i am a person who preaches about stepping up to the plate to making the world a kinder place so if the shoe fits………

I was coming from motor vehicle to Universal Drive yesterday.  Most of us all know that intersection…..the stop line is way before the corner and the opposite oncoming traffic has a green light first.  I am always cautious when I come to these intersections.  I was sitting at the light listening to some great music when I heard this blast of a horn.  I jumped-practically out of the car then heard it again.  I looked around only to see this very angry face in my rear view mirror.  GOOD GOD!  Why do people have to be so combative when it comes to right turn on red.  Who says you HAVE to take that right turn?  Better yet, who the heck passed that law anyway?  It has just contributed to the problem of people rushing around way too much.  But then I thought maybe somehow he had severed his leg and had to get to the hospital quickly? Or he could be in a rush to get to someone having a heart attack!  But by the time I relaxed and realized what was going on the light turned green and I of course went right away.  Well, he passed me (because you know- severed leg) and I was pretty disappointed to see that he was in a rush to get to – yes BJ’s gas station.  So I made the choice to turn in and ask him why he would be so mean!  Let me say, when you come across such an arrogant and combative person don’t expect too much!  BUT I tried!  He was even worse to talk to!  Janie tells me it was a waste of good energy, which she is right, could be true.  However, I had really had it this time.  This was about the third time that I was blasted for not taking a right turn on red and I am getting sick and tired of pulling up to a red light to be honest.  I think I just want to start a campaign……..I want to make tickets for really mean people.  AND I want a mean person jail!  So I can give out meanie tickets and mean people would have to go to mean jail and do really nice things before they can get out! A total meanie rehab would have to take place!  It is the only way!  Jane is right, I may not have had an impact on him and yes he may continue to try to boss people around if they don’t immediately take that right turn on red.  BUT if each of us would stop and tell him he can’t be mean anymore would he stop then?  It’s nice against mean!  So Mr. Meanie in the black Mercedes CT6952- we have had it with your arrogance!  You have been tagged as mean, go directly to jail do not pass go or even pass BJ’s gas station!

Please take a breath at the red lights, don’t rush right out there and take that right! AND by all means PLEASE don’t beep at people who may feel it’s not the time to take that right turn!  It may be the only two minutes in the day you get to look around and see something beautiful! That is unless you have severed your leg…..then it’s ok to beep!

Thanks for listening……..

 In Love and Peace!

Always

Mary

  1. Mia
    5:02 pm on January 29th, 2009

    Mary!!! Loooove the blog.. its a very fun read and so uplifiting!! Two thumbs way way up!!! xoxox Mia ps- i asked if ally could come do some hours at school with our school social worker. ill let u know asap.

 
Life is like a sunny day at the beach!

Life is like a sunny day at the beach!

How easily we get comfortable with our lives.  I don’t know about anyone else but I am always running on high speed, it’s just the way I am.  So two weeks ago, AFTER getting over the bike theft and losing my ipod while doing a three mile training walk, I was commissioned by the girls to run out and pick up some food for them. Our good friend Erica was hanging out at the house and they were all suddenly very hungry.  I was snacking on the best clementine when I ran out the back door.  As my foot hit the ramp all these memories came to me of the previous two years when I slipped on the black ice that always forms on that ramp!  But I hardly got to think much longer than a second when BAMMMMMM down like a ton of bricks.  For that one split second as I was going down,  I thought………..Jeeze I hate to let this clementine go, but how will I land with this clementine in my hand……..and actually I really didn’t have much of a choice to hold onto it as I hit that ramp with a vengeance.  After I looked around to be sure no one witnessed such a stupid clumsy act I took a minute and waited for the girls to come to my rescue, then another minute and then….OH what the heck they aren’t coming………..so I gathered myself up and stumbled back in the house to find out why no one came out.  The noise was loud and my gasp was louder!  As I walked through the door very disheveled the girls  all sat there at the computer completely unimpressed.  I guess they had faith that I would find my way back in!

Anyway……as always there is a lesson here.  Although I spent the weekend icing and with my arm in a big bulky splint I can honestly say it pulled me back into a great realization.  A humiliation if you will, for these times are so important to reflect on your life.  Even for me, someone who lives with two girls who are constantly challenged with physical limitations!  When my arm was in a temporary cast I couldn’t write, eat, grab a glass, cut my food or even blow my nose very easily.  I was able to do these things but it was a challenge.  I really believe that more of us should experience these temporary bouts of challenge.  Not to say everyone should go out there and take a serious fall but maybe if  we all tried to at least reflect on what it is like to live outside our perfect worlds once a week it would give us more insight to appreciate what each of us has.  And have patience and understanding for those who are not so lucky. I know this experience taught me to appreciate how easily simple tasks are for me.

SUNBURN!

SUNBURN!

 

sam's sixth ice cream cone!

 

one of the more tender moments of the trip!

We are now in sunny Florida!  Thanks to some of our loving relatives and great friends we headed down to warm and ice free weather so the girls could move about and enjoy some outdoor freedom.  It has been just so great!  We have been relaxing and really not doing anything specific.  Just enjoying life with good friends and appreciating the fact that we are here.  I had hoped to get in some serious bike riding but the old hand isn’t quite up to it yet.  That hasn’t kept me off the stationary bike however and I am working my  way up to two hours a day on the stationary bike while keeping my balance with a bad bulky hand!

Quick update on the bike theft!  The police feel it’s a done deal; we will probably never see that bike again.  However, the rescue efforts from so many have been overwhelming and Jack and Laura have forgiven me (not that they were mad to begin with).  It is overwhelming to find how many wonderful friends and kind and caring people I have in my life…..I am blessed for sure!  I have a bike from Lauren’s son (he’s grown out of it!) and when I get back it will be tuned up and ready for riding.  Don’t worry! It is presently inside my house-out of harms way.  My kind and generous friend and dedicated scientist Rob has sent me a bike lock which I will use to lock the bike at night to my ankle!  Thank you one and all for your kind offerings and constant encouragement which helps me to look at life though my rose colored glasses!

Stay warm and remember kindness keeps your heart open!

With Love and Peace Always

peace out!

peace out!

 

Mary

 

 

:-)

  1. Sue Kittel
    7:57 am on January 16th, 2009

    Mary, sometimes God gives me a little lesson also and gives me a small taste of disability…like how my knees sometimes hurt when I walk up the stairs in the morning. Every step can send shooting pains. The difference is I can take a pill and feel better, the pain goes away. FA doesn’t go away. Our kids are such valiant heroes of life. I am so honored to know them all…

  2. Laura
    6:37 am on January 29th, 2009

    Wish we were in Florida for a month but one week was a bit of heaven.
    Thanks for the great company, you guys are the best. Jack, Sam’s and Alex’s humor made the trip! (you too Erika) Hope your wrist gets time to heal now that the girls are back at Southern.

    Peace out, me