Comments on: The decision to step up to the plate http://www.openyourheart-marycaruso.info/2009/06/23/the-decision-to-step-up-to-the-plate/ Help find a treatment for Friedreich’s Ataxia! Fri, 09 Jul 2010 16:52:44 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Andy Johnson http://www.openyourheart-marycaruso.info/2009/06/23/the-decision-to-step-up-to-the-plate/comment-page-1/#comment-1807 Andy Johnson Mon, 06 Jul 2009 14:31:33 +0000 http://www.openyourheart-marycaruso.info/?p=472#comment-1807 Way to go Sam and Mary! I know how you feel and I totally agree about the recent research and the team that's helping us all. And I know your disappointment was not because you wouldn't personally benefit from the trial but that you wouldn't be able to help us all. Linda's entering the trial and goes to CHOP in a couple of weeks for her interview. People say things like "I hope you get the real drug and not the placebo" but in our view it really doesn't matter - it's not a personal thing - we're doing it for all of us. I know she will be disappointed if she doesn't make the cut, for the same reasons as you, but this progress is great anyway! And you should let us know what that restaurant is you found - we'll check it out. Way to go Sam and Mary! I know how you feel and I totally agree about the recent research and the team that’s helping us all. And I know your disappointment was not because you wouldn’t personally benefit from the trial but that you wouldn’t be able to help us all. Linda’s entering the trial and goes to CHOP in a couple of weeks for her interview. People say things like “I hope you get the real drug and not the placebo” but in our view it really doesn’t matter – it’s not a personal thing – we’re doing it for all of us. I know she will be disappointed if she doesn’t make the cut, for the same reasons as you, but this progress is great anyway!

And you should let us know what that restaurant is you found – we’ll check it out.

]]> By: John D http://www.openyourheart-marycaruso.info/2009/06/23/the-decision-to-step-up-to-the-plate/comment-page-1/#comment-1532 John D Tue, 23 Jun 2009 23:40:51 +0000 http://www.openyourheart-marycaruso.info/?p=472#comment-1532 A BIG Shout out to Sam. Good luck with your ESPN opportunity. They better hire you! A BIG Shout out to Sam. Good luck with your ESPN opportunity. They better hire you!

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