Mary Caruso

Help find a treatment for Friedreich’s Ataxia!

Well, I have started about 50 posts and each one went into the trash.  Why?  Well, because when I did my October post the news had spread quickly and the town was coming in from everywhere to start the project on our house.  It is is amazing how people are giving big time of their time, money and energy.  So…………how do you really write about that and express genuine heartfelt emotions?  That is the big question!!!! Everything I wrote just seemed so trivial in comparison to what is being given to us and done for us.  Then I started to think about it.  That is how people are misread.  One could look at my lack of writing as a disregard for what is being done.  I would never want that.  So I will write and this time I am not going to read over it.  I will not let my neurotic ways overcome the posting of this blog :-) !

Wow!  Garage......GONE!

Wow! Garage......GONE!

There is so much excitement around the project.  When I say people are coming out of nowhere I am very serious!  There is a web page being developed, that should be up soon.  Now there is a facebook page so people who are brave enough to be on facebook can follow but soon anyone will be able to follow.  This week was a week filled with two incredible meetings.  The first was a meeting of people who wanted to be on the fundraising committee (ouch for those of you who know me……that one hurt!)

such great friends!

such great friends!

Alison.......I watched as she grew into this amazing, wonderful attorney!

Alison.......I watched as she grew into this amazing, wonderful attorney!

But the room was filled and everyone was energized and it is so hard to understand why everyone is being so generous to us!  Then last night the web page meeting.  A group of a few people sat around a counter and thrashed out all the details-almost all of was foreign to me!  But as I sat kind of on the outside of the circle, I looked in and saw a group of incredibly generous and kind people working well into the night for us!  Anthony who doesn’t even know me-NEVER met the girls……..can you imagine?PB040209 Two dear old friends………how important is that in this world? To know that Suzie and Ali have known me both since the girls were very young and still stay close?  Ali used to babysit for the girls when they were very young, then ended up working in the store!  Suzie who is the president of Open your Heart did the very first fundraiser for Sam when she was diagnosed in 95.  I’ll never forget it!  AND I sat at the counter of Fran and Tracy’s home where all the work was being done.  Tracy supported me in the store for years and purchased so many things as their daughter Taylor grew up into this beautiful young woman, she was all curled up on the sofa…..so cute!  I still remember the photo of Taylor in her beautiful communion dress!  I had so much gratitude for their support of the store and I just can’t express the gratitude now.  The best is I never sat at their counter before………such a simple pleasure that is a result of all this incredible work.   So the energy this week was enough to fill up the empire state building.

opening their hearts and their home!

opening their hearts and their home!

I may never really be able to express the deep  feelings we have with my words in this blog but I will try anyway.  It is the least I can do.  The girls call daily and they can’t look enough at the plans.  David is here often and runs back and forth meeting people and getting all the drawings done.  There is a banner in the front that is filled with names of people pitching in, they are now working on banner number two and it’s also filling up FAST!

This is a daily reminder that life is good and we can overcome any obstacles as long as we have each other as human beings holding us up and filling us with courage and strength.  Friends who are real friends and a community that is strong in kindness and compassion…………..

Thank you everyone!  For the compassion and kindness that moves me through this journey.

In Peace and Love Always

Meir

:-)

UGGGGG……….still not sure  it’s good enough, but I won’t read it!

4 Comments

  1. Suzy
    6:53 am on November 6th, 2009

    And what Mary neglects to say in her blog is that I am the one inspired by her and the girls. I am the one that should be ever so grateful for fulfilling a part of my life that I never even knew existed until I met this family. So Mary, Sam and Alex…remember how much I love you guys and that I will forever be in your debt for making MY life so happy :)

  2. Lauren
    1:39 pm on November 18th, 2009

    I can not say it enough …. more people should learn from Mary and the girls. She has such a VERY special way of looking at things and finds the best in all when Mary, Sam and Ally are the Best people!!

  3. sandy
    10:05 am on November 26th, 2009

    Your strength, your dignity, your compassion for others brings me to tears. you are truly my hero. Love you, Sandy.

  4. Diane
    5:25 pm on March 3rd, 2010

    Mary, you are always so humble. You are the most wonderful, dedicated, loving friend and mother that two girls could have. I have known you and the girls for many years and you always continue to amaze me. If we all had an ounce of your love and determination, what a wonderful world this would be.
    Diane