Mary Caruso

Help find a treatment for Friedreich’s Ataxia!

Well, It is official………22 days until the big bike ride!  I realize that I have not written too much about how my actual training is going.  I have written about everything but…….So I will fess up now to how unprepared I really am.  However there is so much other stuff in life that is important yet relates to this whole journey…….don’t forget we are all trying to open our hearts and accept ALL people.  We are moving to co-exist as a nation of understanding and kind individuals!

my inspiration

my inspiration

my joy with my sorrow!

BUT there I go again away from the ride……so for all of you incredible people who have invested in me for this ride I can tell you that I have learned a TON!  I now know how to hold my wrists on the bike AND my arms.  How to position my head (not a normal position I promise) and even how to actually pedal correctly.  I know this because I was doing all of it WRONG!!!!  I had a great training session with Ron at Pedal Power in Middletown.  They are my new best friends.  It is a great little shop………now when I say little I don’t mean small.  The area is large, the selection of bikes huge, the knowledge of the staff unsurpassed! When I say small I mean it is intimate, friendly and embracing.  When I first walked in Paul met me within seconds……..huge smile and a very warm welcome.  He could probably see the terror in my eyes because he was very gentle in his approach.  It brought me home to how I would try to greet my customers when I had my shop.  He had the very hard task of fitting me to my bike helmet….NOT an easy task.  I think that my head is way too big for my body.  And those things are not the least bit stylish.  Someone has to do something about those things……my riding helmet back when I was a kid looked better.  And maybe my friends Holly and Kyle who ride can get by wearing them because they are unbelievably good looking but what about me?  UGGGGGG…it is NOT good!  So anyway Paul did fit me after a long time.  Each time we got closer to the right fit I would break out in a cold sweat!  remember I am VERY claustrophobic!  But you gotta do it!  So I sucked it up for safety sake! And we did it…..the final fit was perfect!  It took a few minutes for the sweat to stop and the room to stop spinning and my ability to breathe return!  I have gotten used to the helmet and now it’s only a few seconds after I put it on to get back my courage.  NOW! Combine that with clipping your feet into the pedals, putting on those important gloves, balancing on the stupid bike and EVEN…..GULP! riding down route 80 (from the library to my house)……….but I DID IT!!!!!!  So what does everyone think?  Too small of a step?  

The general concencious is…………I am in big trouble!  Last night there was a big surprise at my house when I got home.  A group of dear friends all traveled to be together to have a great dinner and celebrate friendship, love and kindness.  It was the perfect night!  My girls planned it……Ally & Sam & Laura & Janie pulled it off without a hitch and we had fun!  The only bad part is that EVERY other word was about the bike ride!  And it wasn’t all good!  There were some knowlegable riders present, my friend Mike is a big peddler from way back and he was pretty tough on me!  There is SO SO much to know and so much work involved.  Everyone agreed……..I am in big trouble!  

karen with the two bike experts=john & mike

karen with the two bike experts-john & mike

PLEASE REMEMBER!  I never said I was well trained or experienced.  I am doing this for enlightenment and to become a better person.  I am doing this for those who can’t ride or even walk, I am doing this for those who have a hard time existing in life, I am doing this for the betterment mankind!  I want ALL people to know that you have to work hard in life, strive to exist and LOVE what you have not WANT what you don’t have!  So one way or another I will finish the ride.  Mike thinks it’s going to be sometime in June……John thinks I will do so well that I’ll keep going to Canada :-) !  Either way the important lesson is……………I love both these guys for the different people that they are and the joy they bring into my life.  (John reads the blog…..Mike does not!) I embrace my life for the beautiful path is takes-my great kids, my wonderful friends and family, my incredible sisters, the forever memory of my mom and dad (they ride with me each time I get on the bike) ……………… and I am grateful for each and every day!

Hope I talked enough about the ride! I am working on my core strength and as of today I can ride 10 miles…..Mike wants me to do 15 THIS week!  UH OH!

Until then……..

In Love and Peace

Always,

Meir   

it's the people in your life that make the journey worth living!

it's the people in your life that make the journey worth living. Missing are Darren & Jackie!

  1. janie
    1:37 pm on February 22nd, 2009

    hey mary

    it was so much fun last night and I think your friends generated so much energy for the ride— I wish you the best and give you so much credit for doing this— it will be great and you will get so much back from the other participants— so, just aim and go—
    we will all be with you in spirit and love
    janie

  2. John D
    5:42 pm on February 22nd, 2009

    Peace and Happy Birthday!

  3. Laura
    6:47 pm on February 22nd, 2009

    We are all blessed to have you and the girls in our lives! You are not only inspirational but you don’t give up. NEVER NEVER NEVER give up.
    If you only bike 1 mile or 400 miles you did better than a lot of people in the world. However; you touched and inspired thousands maybe even millions someday. God Bless all of you riding to find a cure; and you will!

    Peace Meir and Happy Birthday !!! Love me

    PS: if you really want a challenge bike the 5 mile loop with Jack

  4. Cindy
    9:05 am on February 23rd, 2009

    Happy Birthday…

    I am with you and praying for your successful ride.

  5. Matt and Babi
    8:38 am on February 24th, 2009

    Mary,

    So good to talk with you today, babi and I will be thinking during your big ride…kepp up the hard work, we are so proud of you. Give the girls a kiss for me. Love and prayers.

  6. Cassie Richard
    7:12 am on February 25th, 2009

    Mary,
    I am so proud of you and honored that you are going on the ride! I live in NY my son Albert is 12 with Fa. I met your family at the Phili conference. We just saw Dave Lynch who I learned is also going on the ride. The joke at CHOPS is that a car will have to follow Dave for fear of a heart attack!!! You are all doing such a great thing. Take your time be safe and know we are so proud of you.
    Cassie

  7. Paul K
    10:03 am on February 25th, 2009

    Great (wide-ranging!) blog, Mary! And you actually talked about the ride in this one! lol Last year there was a great sociable group at the back of the pack that talked their way through the 50 miles; you’ll fit! And Linda Johnson said her Ipod saw her through; she moved into the music and let the miles roll.

    See you soon!

    Paul K

  8. Mike
    1:44 pm on February 28th, 2009

    Go M.A.C.Go!!! You can do 200 miles.Just sleep on your stomach. Ouch!

  9. Pam
    5:16 pm on March 15th, 2009

    Go Mary Go!!!!!! I am thinking of you and wanting the very best for all of you! I am anxious to hear how wonderful you feel at the end of the ride! Go for it!

 

 

some choices in life come so naturally!

some choices in life come so naturally!

 

YOU ARE ALWAYS ONLY ONE CHOICE AWAY FROM CHANGING YOUR LIFE.

 

That is a quote I recently read and thought about it a lot!  I think I have always been a person of principal but I have always been a kind of coward when it comes to confrontation.  So that has kept me out of a lot of trouble over the years.  But keeping with the quote and my passion for making the world a kinder place I realize that sometimes you just have to speak up.  This brings me to two episodes that I feel compelled to talk about; one I spoke up and one I will not.  Well, I won’t speak up directly but I will speak up about both now in hopes that a few people will realize that we can do little things as human beings to make a difference.

The first episode is really about Sam.  Sam has an internship, which she loves!  She has been working at her internship now since the start of her fall semester.  It isn’t easy for her to get there but she does it.  I think she has missed one day since she started.  I am proud because despite having to always find rides, being dropped in the parking lot, coordinating people to get her in and out of the car and getting into a building that isn’t accessible friendly she perseveres.  Well, the other night she was working and they ended up closing early.  Everyone packed up, walked outside, locked the building, got into their cars and left.  Well, that is everyone but Sam……..now she told me not to say anything and I will respect that but let’s think about this.  AND before anyone says anything,my disappointment has nothing to do with the wheelchair.  If I was at a meeting at night and I walked out with a friend who was waiting for a ride I would not leave them there alone.  It’s about being a kind human being, a thoughtful person.  Besides, imagine if someone waited with her?  What a chance to get to know someone a little bit, maybe a joke or two or just a small bonding moment.  To me there was a choice for any of those people to change their life just a little bit…………to make a new friend, do something nice.  Instead they all went home their separate ways and that is that, to me an unkind, uncaring sort of existence.

This next escapade will probably get me a lot of flack but i am a person who preaches about stepping up to the plate to making the world a kinder place so if the shoe fits………

I was coming from motor vehicle to Universal Drive yesterday.  Most of us all know that intersection…..the stop line is way before the corner and the opposite oncoming traffic has a green light first.  I am always cautious when I come to these intersections.  I was sitting at the light listening to some great music when I heard this blast of a horn.  I jumped-practically out of the car then heard it again.  I looked around only to see this very angry face in my rear view mirror.  GOOD GOD!  Why do people have to be so combative when it comes to right turn on red.  Who says you HAVE to take that right turn?  Better yet, who the heck passed that law anyway?  It has just contributed to the problem of people rushing around way too much.  But then I thought maybe somehow he had severed his leg and had to get to the hospital quickly? Or he could be in a rush to get to someone having a heart attack!  But by the time I relaxed and realized what was going on the light turned green and I of course went right away.  Well, he passed me (because you know- severed leg) and I was pretty disappointed to see that he was in a rush to get to – yes BJ’s gas station.  So I made the choice to turn in and ask him why he would be so mean!  Let me say, when you come across such an arrogant and combative person don’t expect too much!  BUT I tried!  He was even worse to talk to!  Janie tells me it was a waste of good energy, which she is right, could be true.  However, I had really had it this time.  This was about the third time that I was blasted for not taking a right turn on red and I am getting sick and tired of pulling up to a red light to be honest.  I think I just want to start a campaign……..I want to make tickets for really mean people.  AND I want a mean person jail!  So I can give out meanie tickets and mean people would have to go to mean jail and do really nice things before they can get out! A total meanie rehab would have to take place!  It is the only way!  Jane is right, I may not have had an impact on him and yes he may continue to try to boss people around if they don’t immediately take that right turn on red.  BUT if each of us would stop and tell him he can’t be mean anymore would he stop then?  It’s nice against mean!  So Mr. Meanie in the black Mercedes CT6952- we have had it with your arrogance!  You have been tagged as mean, go directly to jail do not pass go or even pass BJ’s gas station!

Please take a breath at the red lights, don’t rush right out there and take that right! AND by all means PLEASE don’t beep at people who may feel it’s not the time to take that right turn!  It may be the only two minutes in the day you get to look around and see something beautiful! That is unless you have severed your leg…..then it’s ok to beep!

Thanks for listening……..

 In Love and Peace!

Always

Mary

  1. Mia
    5:02 pm on January 29th, 2009

    Mary!!! Loooove the blog.. its a very fun read and so uplifiting!! Two thumbs way way up!!! xoxox Mia ps- i asked if ally could come do some hours at school with our school social worker. ill let u know asap.